The Path to Data Availability: Complex Challenges and Technical Dilemmas
Praktische stappen op weg naar databeschikbaarheid - ICT&health
Summary
This article discusses the current situation in Dutch healthcare information systems, where 'data availability' is positioned as the core of national vision and strategy. It outlines multiple technical and structural challenges facing its realization, particularly noting the evaluation of existing technologies like XDS and the pressure to choose among new standards such as FHIR, OpenEHR, OMOP, etc.
Details
The Dutch healthcare information system currently places 'data availability' at the core of its national vision and strategy. Although many hospitals have incorporated this into their strategies, a significant gap exists in the actual provision of information. The authors point out that experiences with data sharing using technologies like XDS are not always positive, while multiple standards and infrastructures—such as FHIR, OpenEHR, OMOP, and XDM—are emerging as potential choices. The article highlights the 'choice stress' regarding where scarce ICT resources should be allocated. This risk distracts from improving data handling practices that could already be implemented and are essential for meaningful future data exchange. The healthcare information system is inherently complex, with various initiatives and standards across multiple layers. The focus on data availability adds further complexity to this existing structure. While the national strategy provides direction, it fails to offer concrete guidance (houvast) for care providers preparing for what lies ahead, pointing to a structural problem.
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